My darling little man,
Mommy is SO proud of you. I think and look back at how far you have come from being a tiny little baby fighting for his life in hospital at 1kg to seeing you now. My little boy God spared your life as small as you were he had BIG plans for you. You have overcome every sickness that has been thrown your way. As daddy says "you have walked the white line a few times". We have almost lost you so many times but yet you always have proved to us and the doctors how strong you are.
I look at you today and I cannot believe how well you are doing. You have started EATING. At 4 years 9 months you have started eating. Something that "normal" babies and kids do so naturally has been something so difficult for you and you again have proved to us that IN TIME you can do these things.
My love you go to hospital every 3 weeks for polygam. Every 3 weeks mommy has to take you and feel the pain of knowing that they have to put a needle into your arm in order to get your medication and keeps you healthy. You are so brave, you don't even cry - you take everything in your stride. You are amazing my boy. Because you have a low immune system you catch things so easily which normally ends up with you gagging and vomiting all day which is terrible for us to watch. I can only imagine how you must be feeling my sweet heart. BUT always you bounce back and come out smiling. I seriously don't know how you do it. You are absolutely amazing!!
In 2 weeks time your little sister is born. I wonder how you are going to feel about that? Mommy has to go to hospital for 3 days. I am going to miss you SO much but hopefully they will allow you and daddy to visit me and your baby sister every day. I am going to really miss our alone time that you and I have. You and I have such an amazing bond, we are very close and I love you with all my heart. You will be on school holiday soon and we will be able to do lots of bonding time together before your baby sister arrives.
So my little pumpkin - keep eating well like you are doing at the moment. Soon we can remove your feeding tube once you are eating enough to cope without it. I look forward to the day that your tube is removed. Something that has kept you alive and nourished all these years!
My darling you are amazing, a true miracle and a gift from God to mommy and daddy and we love you very much!!! You are such an example to us showing us how no matter how tough things are you can always get through it! You have proved this time and time again to mommy and daddy.
I love you so much.
Love
Mommy
Mommy is SO proud of you. I think and look back at how far you have come from being a tiny little baby fighting for his life in hospital at 1kg to seeing you now. My little boy God spared your life as small as you were he had BIG plans for you. You have overcome every sickness that has been thrown your way. As daddy says "you have walked the white line a few times". We have almost lost you so many times but yet you always have proved to us and the doctors how strong you are.
I look at you today and I cannot believe how well you are doing. You have started EATING. At 4 years 9 months you have started eating. Something that "normal" babies and kids do so naturally has been something so difficult for you and you again have proved to us that IN TIME you can do these things.
My love you go to hospital every 3 weeks for polygam. Every 3 weeks mommy has to take you and feel the pain of knowing that they have to put a needle into your arm in order to get your medication and keeps you healthy. You are so brave, you don't even cry - you take everything in your stride. You are amazing my boy. Because you have a low immune system you catch things so easily which normally ends up with you gagging and vomiting all day which is terrible for us to watch. I can only imagine how you must be feeling my sweet heart. BUT always you bounce back and come out smiling. I seriously don't know how you do it. You are absolutely amazing!!
In 2 weeks time your little sister is born. I wonder how you are going to feel about that? Mommy has to go to hospital for 3 days. I am going to miss you SO much but hopefully they will allow you and daddy to visit me and your baby sister every day. I am going to really miss our alone time that you and I have. You and I have such an amazing bond, we are very close and I love you with all my heart. You will be on school holiday soon and we will be able to do lots of bonding time together before your baby sister arrives.
So my little pumpkin - keep eating well like you are doing at the moment. Soon we can remove your feeding tube once you are eating enough to cope without it. I look forward to the day that your tube is removed. Something that has kept you alive and nourished all these years!
My darling you are amazing, a true miracle and a gift from God to mommy and daddy and we love you very much!!! You are such an example to us showing us how no matter how tough things are you can always get through it! You have proved this time and time again to mommy and daddy.
I love you so much.
Love
Mommy