On Saturday I decided that there was no need for us to stay in the hospital. Jason was hydrated, the gagging and vomiting had stopped and the feeds are up to me. Only I can get that right. The dietitian wants to try another formula which we should get in the next day or two. I am nervous about trying the new formula but we don't really have an option. He isn't managing volume or any added calorie powders and the only way is to try a higher calorie formula. We have to see how it goes. Jason doesn't handle a lot of formulas, some of them he reacts violently to, instant vomiting.
So anyway knowing Bruce and I had a wedding to go to I eventually smsed Dr. P to say we need to get going. He discharged us telephonically and we managed to get home unpack, pack again and go to my folks so we could get to the wedding on time. My folks watched Jason and Nicole while Bruce and I went to the wedding and finally had some alone time. Something we don't get to do. My mom and dad did a great job with looking after the kids and feeding Jason his 20mls every 20 mins. Jason was fine, cried a bit for me in the evening but I think he is just so use to me being there 24/7. Bruce and I had a great break and it was SO nice to forget about all the stresses we are going through. So glad we didn't miss the wedding as well.
Jason has been fine. Sleeping a lot but managing his small regular feeds. We are making sure we are keeping him hydrated. We haven't been able to replace Erin yet and I have to get back to work to earn some money. Every day I don't work I don't get paid. I feel guilty that I can't stay at home and look after Jason myself but we just have too many expenses and responsibilities for me to give up working. Besides the finances I actually enjoy work, it's my me time, my escape from the stress and takes my mind off of things. We have decided to send him to his little cresch tomorrow and we will see how he goes. Will we replace Erin? I don't know yet. I have put an advert out there and spread the word but it's not so easy finding someone on a limited budget and also someone that is prepared to take on such a responsibility. Time will tell, we shall see and take it one day at a time. Only time will tell. The little cresch is really lovely, Jason has always loved going there and the owner and teacher love Jason to bits. At the end of the day we are taking a chance with infection yes but we just have to see how we go, whether we are finding a caregiver/teacher or sticking to school. Time will tell.
At the moment it's one day at a time, let's wait and see and time will tell. BUT whatever happens, happens. I have my faith and I know everything in life happens for a reason. God is watching over us and guiding us every step of the way.